It is July and I have booked our next flights. And accommodations. And some trains. In February Alex thought we would not travel again. Continue reading “Warm dry winter, wet cool summer”
How we packed the coach
We have been on the road for some time now. This is the first of the few videos we have already recorded, that will follow not necessarily in the chronological order. Come along with us and our new adventures.
Wish us luck!
Storyline: Atlantic Canada, Take 2
Sun, May 22
Oh right, day four on the road and all kind of things have already happened. The planned 3+ months trip was supposed to start Continue reading “Wish us luck!”
Winterland
Join us in the snow of Jan 17 for some fun and update to our YouTube audience. It’s been a while since Alex’s last video and as you know thing have changed for good. Continue reading “Winterland”
Epilogue to a story of a paralyzed vocal cord
Storyline: Thinking in Autumn Colours
I hope this is the last post from the health compartment for a long time. We wrote about almost everything that happened the second half of 2021 with Alex’s health. Continue reading “Epilogue to a story of a paralyzed vocal cord”
Being absent
Storyline: Thinking in Autumn Colours
From the horse’s mouth
On Wed Oct 6 I was home for the first time in a month, having been discharged from my unplanned all-inclusive vacation in hospital. I’d been well-taken care of 24/7 by teams of nurses, Continue reading “Being absent”
D-day
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Wed Oct 6
D is for discharge (from hospital, that is) (Oh, and here am I thinking D is for Diana😊 – D). The previous night I had slept better than I had in days. Having only two washroom breaks, and no pain meds was a big win. Continue reading “D-day”
It’s not all sunshine and roses
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Sat Oct 2 and Sun Oct 3
Since there were no medical procedures or visits from various health care professionals, Saturday was an uneventful day. The odd headache, continuation of anti-nausea meds, Continue reading “It’s not all sunshine and roses”
So many meds
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Happy New Year to all our readers around the world! Wishing you lots of health, peace and joy. Will the pandemic end this year? Continue reading “So many meds”
CLL fights back
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Sun Sep 26
It was a horrendous night. At the time, I thought that the huge headache that grew from nowhere the previous evening was because of the laxative I’d been given. Continue reading “CLL fights back”
First chemo and a G-tube
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Fri Sep 24
Will Alex get the g-tube inserted today or will it have to be done by a different doctor next week? That was the question on my mind in the morning. The doctor scheduled to do the job was going to be off work for a week as of the end of the day. Continue reading “First chemo and a G-tube”
Watershed day
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Thu Sep 23
My hematologist called. He was actually on vacation but had been contacted with the results and had immediately done some research and called me. The results of the spinal tap were conclusive, Continue reading “Watershed day”
I don’t want to go through this
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Thu Sep 16
The MRI results are in. Like all the other tests I’d had, the results were negative. Sigh. “Now what?”, I thought. I wished I hadn’t asked. I’ll be given a spinal tap on Monday (the 20th). Continue reading “I don’t want to go through this”
I’m a conundrum
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Sat Sept 11
The weekend ENT (ear, nose, throat) doctor came by on his rounds and gave me an update. Here’s what I texted Diana after his visit: Continue reading “I’m a conundrum”
Investigation begins
Storyline: Thinking in Autumn Colours
From the horse’s mouth
Tuesday September 7 was mostly a blur. I was given more saline, but I wasn’t much with it. At one point I was told that I’d be getting a CT scan. Radiology was just down the hall and I followed a PA (Patient Assistant) to the waiting room. Continue reading “Investigation begins”